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Keep the Faith: Orphan disease leaves middle school student alone to deal with her pain

 

Last updated 11/27/2017 at Noon

Eighth grader Faith Murray was a competitive swimmer, played the saxophone and the flute until April when the latest wave of pain caused by the rare disease known as Chronic Recurrent Multifocal Osteomyelitis (CRMO) shut down her busy life. Faith suffered two collapsed vertebrae at the age of 4, but her condition was not diagnosed for almost three years. Only one out of a million girls in the world have the ailment, which explains why investment into research into treatment and a cure have left CRMO to be classified as an “orphan disease.”

Six months ago, Alderwood Middle School student Faith Murray was a competitive swimmer. Today, she needs help to get to her classroom on the rare days she is actually able to go to school.

Faith’s heartwarming smile and her innocent eyes conceal an old soul who has endured more than her share of agony during her short span of years. She maintains an upbeat spirit and spends her time doing all she can to improve the lives of the people around her.

The 13-year-old has suffered from the crippling pain of Chronic Recurrent Multifocal Osteomyelitis (CRMO) for almost a decade. Her ailment wen...



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